Behind My Eyes

It might be expected that my awareness would be immediate, the slightest breath caught or tension triggering the internal shift. But it’s not this way.

It sneaks up on me, a gradual discomfort. A slow creep of intensity that climbs without alarms until an unmapped threshold is crossed.

It may be that the constant low hum of ache just above the place where my neck meets my skull inures me to the change. There is always discomfort – but it’s small, manageable.  The pain is mostly static – sitting in one place, hovering at the same number on the dial; a background noise that registers no more than the dishwasher or the brittle buzz of a fluorescent light. It pulses slowly within a clearly defined wavelength, a period of hours or even days. Easy to tune out, modest enough to dispel with small doses of America’s most trusted pain reliever. I could ignore the hum and surge if I chose, but that’s tiring, so I let the pain medicine silence the ache for me.

The ever present hum of mild pain lulls me and it takes a pinprick through my awareness before I realize that something is different. But once the change makes itself known I am instantly in a heightened state of alertness, taking an internal inventory.

When the pain climbs above the curve of my skull in the back, I shift my posture. When it moves from the back to the front, my breathing quickens. And if the discomfort settles over my nose and eyes, not so much pain as tightness, like a blindfold aggressively bound, my heart rate climbs at alarming speed. I sit perfectly still, sending my sensory awareness into a sphere that intersects my head at the lips, ears, and crown: a reservoir, a rain gauge.  I assess the size of the ball-shaped pain – how much space does it take in the reservoir? A small amount, surely, I tell myself.

What color is the pain? I look into the reservoir. Not blue. Never blue. Blue doesn’t register on the gauge. Blue is comfort and coolness. It is never blue. But yellow, perhaps, tinged with orange.

But here is the reason for the stillness, why I won’t move, am terrified to move. I have to watch closely, finding the edges of the pain, memorizing its color, so I can appreciate change. I have to know if the ball floating in the reservoir is getting larger or more vibrant.

It swells slowly, modulating subtle colors. The slowness itself is reassuring, in contrast to the lightening strike. I never lose track of the perimeter, the color moves only modestly along the spectrum.

And then it is static again.  A larger, brighter ball, but locked in size and color. The ache at the top of my head makes me anxious, the pressure over my nose scratches angrily at my reassuring words.  They sneer at my courage and threaten me with panic and tears. They laugh at how my iron will is truly made of spiderweb silk and taunt me with memories.

I refuse to engage with them, although I could not ever say I ignore them, until the ball shrinks again, and the color fades to a dull mustard. The barbed imps retreat, for however long, and I am alone behind my eyes again.

13 Responses to Behind My Eyes
  1. By Word of Mouth Musings
    February 28, 2012 | 7:50 pm

    and with this, its a shame that you don’t get another chance in 2012 for Voice of the Year!
    This, this needs to be heard!

  2. Sherri
    February 28, 2012 | 8:09 pm

    Oh, my amazing friend…you are so strong and this is such an unusual and annoying demon you face. Chronic pain can strip you of your senses anyway, but when associated with something as scary as you faced I would find it crippling. This post is beautiful and raw emotion, just as if I were sitting by your hospital bed again listening to your voice.

    Much love to you…

  3. Cameron
    February 28, 2012 | 8:23 pm

    Oh, Lori. I’m brokenhearted that a creature of light such as yourself suffers like that, but you bring the pain so vividly to light that I have to applaud you making it real enough for people to see it.

    And it goes without saying that I wish more blue for you.

  4. Renee
    February 29, 2012 | 4:33 am

    Oh Lori. You arrive in my inbox. I read and smile, or laugh. But today I am not laughing. Today I want desperately to find a way to hold you and make the pain go away.
    To let you know I love you and am thinking of you.

  5. Suniverse
    February 29, 2012 | 7:47 am

    Beautifully written, but I’m sorry that you had to write it.

    Sending you good thoughts.

  6. John
    February 29, 2012 | 7:52 am

    I thought I was the only one who didn’t understand the 1-10 pain scale, because pain is in colors. Though green is pleasant. Red or white are to be avoided. Blue is static noise but not painful. Purple is a unique kind of pain all to itself.

  7. Laura
    February 29, 2012 | 5:37 pm

    my words cannot be said here…in a forum to the public. But only you could make beauty and form of pain.

  8. Dana @ Bungalow'56
    February 29, 2012 | 6:45 pm

    Lori,
    Wishing you could just throw the damn ball away.
    Hate that you could write this.
    Regardless of how brilliant it is.
    Dana

  9. alonewithcats
    February 29, 2012 | 9:05 pm

    It pains me that wrote this, even though you wrote about the pain beautifully.

  10. MJ (aka Missy Jo)
    March 1, 2012 | 12:17 am

    When you’re trapped alone with the pain it’s a scary place to start with. You’re never trapped WITH someone to comfort you, as the very essence of pain is isolating. This kind of pain, the kind that will never go away, that brings with it the fear you’re going to experience the thing you fear the most, every. single. time….it’s a rare and inhuman kind of torture. I think we go a little bit crazy every time it happens. Maybe I should word it “a little bit MORE crazy”. Lori my friend, I wish all the red M&Ms in the world that I could take this pain away from you. I wish ALL the M&Ms in the world that I could take the fear away. You are such a bright light in our lives, you bring us so much happiness and so many laughs and smiles and so much insight…it’s simply not fair that you have been dealt this hand. I know I know, life’s not fair. But this is so far on the opposite end of the spectrum from fair. I know the fear will never go away. But I’m praying with every breath that the pain will. That it fades more every day, and that it becomes nothing more than an occasional memory, and that that ball of color stays blue for you forever. <3 Sending you endless hugs and love and prayers my friend.

  11. Emily
    March 3, 2012 | 4:26 am

    A beautiful portrait of pain…reminds me of the time I had an ear infection and I felt like the pain was sparking and crackling.

  12. julie gardner
    March 3, 2012 | 9:50 am

    Blue is my favorite color.
    …just so you know.

  13. Katie
    March 3, 2012 | 11:11 am

    yes. pain is color. i cannot tolerate anything that starts to have red seep in.

    and you? for you I wish a wash of blues and greens.

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